My life shattered..Who is she?

khadijamathew
By khadijamathew

Bismillah Ir Rahmanir Rahim

Ramadan Mubarak

Assallam Aleikum

Hello everyone.

My life has been shattered. She is no longer the person I thought she was. I do not know who/what she is anymore. Has any of you lived your entire life beliving in something and had it taken away from in the blink of an eye? Have you been told that you are not who you think you are? I hope no one has been dealt cards as unfair as ours in the game of life.

My sister was suffering from amenorrhea. She had not been concerned about it much. Just hoping it would happen when it would. I prayed to Allah to make her normal. To be able to bear children. Couple of days back a very nice and devout muslim send her a letter with the intention of knowing her better to so that he could tell his folks about her. This is when she decided to get herself checked out. Now I wish she hadn't. She has been diagnosed with a very very rare condition. She has Complete androgen insensitivity syndrome.

From wikipedia
Complete androgen insensitivity syndrome (CAIS) is a condition that results in the complete inability of the cell to respond to androgens.[1][2][3] The unresponsiveness of the cell to the presence of androgenic hormones prevents the masculinization of male genitalia in the developing fetus, as well as the development of male secondary sexual characteristics at puberty, but does not significantly impair female genital or sexual development.[3][4] As such, the insensitivity to androgens is only clinically significant when it occurs in genetic males (i.e. individuals with a Y chromosome, or more specifically, an SRY gene).[1] All affected individuals are phenotypically female; they develop a normal female habitus, despite the presence of a Y chromosome.[1][5][6][7][8][9]

I am posting here in the hope of forming an online support group as I do not know what to do about this. She is in India and this is actually her profile I am using. I do not want to talk about this in India. I do not have any support from my family due to my faith. She will be seen as an outcast. The dreaded and shunned third sex.

Ya Allah I know you do everything with good intention. But what is the meaning of this test? Please pray for us brothers and sisters. If any of you have a similar condition please get in touch with me. Also any religious scholars please guide me regarding what are the religious implications? Can she still be with women as before? Or is she considered male? Should she dress as female or male?

I am sorry if this is the inappropriate forum to post. And MODS please feel free to delete this post if you feel it is inappropriate.

Looking forward to you replies. Any input is appreciated.

Jazakallah Al Khair

By Miss Mimi• 25 Feb 2013 10:00
Miss Mimi

I'm so sorry to hear about your sister Khadija. I think, beyond medical consultation about her condition, you also need to find her a good counselor. Being told you'll never be able to bear children will be hard for her.

But she is still your sister, regardless of her condition. You need to be there for her and assure her she's perfectly normal.

By MarcoNandoz-01• 25 Feb 2013 09:39
MarcoNandoz-01

Shaktimaan : it’s a medical condition ya friggin idiot!

By austin smith• 25 Feb 2013 02:13
Rating: 3/5
austin smith

I'm a doctor. I'm a muslim. Clearly you have consulted with a doctor already. You should go back to this doctor to discuss the next steps forward (likely you have already done this). For all practical purposes your sister is a female who is unable to bear children. She would likely require a vaginal exam to know the extent of her abilities to engage in intercourse, and would also require removal of undescended testes. If she is able to engage in intercourse (which she likely can), then all that is required is that she inform her future husband that she doesn't have a uterus therefore will be unable to have children, that simple. I wouldn't get into the details with anyone because it is irrelevant. Your sister is a WOMAN and always will be a woman. Do not involve scholars in the debate because they likely have no idea what androgen insensitivity syndrome is and will make up something so not to sound uninformed. Lastly, your sister is not part of the "third sex" someone mentioned. She does not have any parts that are male. She is 100% female.

By azilana7037• 21 Jul 2012 23:50
azilana7037

with a Y chromosome.

Come to think of it...if the MAN "really loves" her, he will overlook "that genetic fluke part of her" and that she wont be able to procreate.

I hope she would be able to recover from this fact and live as a normal person...because she is.

All she needs now is the support of her family and friends...away from ignorant, close-minded and judge mental people.

By azilana7037• 21 Jul 2012 11:46
azilana7037

as it only appears in 1 in 20,000 births.

For her to recover, she may need a good psychiatric help and away from your home country where she could be safe and at peace.

Hope she get well soon.

By azilana7037• 21 Jul 2012 11:43
azilana7037

The OP's sister is physically a WOMAN...with breasts, vagina...BUT NO UTERUS.

What the OP failed to state is if its a complete or incomplete type.

Complete androgen insensitivity prevents the development of the penis and other male body parts. The child born appears to be a girl. The complete form of the syndrome occurs in as many as 1 in 20,000 live births.

Incomplete AIS can include other disorders which is associated with breast development, failure of one or both testes to descend into the scrotum after birth

what's wrong with her is internal (with her endocrine, reproductive and/or immune system)

She was raised as a girl...looks like a girl...She don't have a PENIS or scrotum/testicles....so she's not a "hermaphrodite".

She can never marry...or have kids...that's the sad part.

By khadijamathew• 21 Jul 2012 11:38
khadijamathew

Ramadan Mubarak

Assallam Aleikum

Thank you all. Jazah Allah Al Khair.

I am sorry to inform you that my sister attempted to unsuccesfully take her life last night by overdosing on some pills. Alhamdulliallah she is safe. She has been committed to a psychiatric facility for her safety. I was very busy yesterday. thank you for your sincere replies. Please pray for my sister. I am afraid she may loose her mind. And so may I.

Waaleikum..

By timebandit• 20 Jul 2012 21:18
timebandit

Dp

By timebandit• 20 Jul 2012 21:16
timebandit

Zzzzzzzzzz too much drama

By anonymous• 20 Jul 2012 21:12
anonymous

When we are holier than thou we fail to read. The sister seems to be fully aware of what it is. She is only worried about the misconceptions of the less informed. Especially people back home in India which may not be as liberal as many other places we know.

"I do not have any support from my family due to my faith. She will be seen as an outcast. The dreaded and shunned third sex."

For them anyone with testicles and breasts are probably (sorry) an eunuch. And in these cultures the ability to reproduce is of great importance. A barren womb is considered a curse. Many lives have been lost over similar issues.

So please do not torment the already distressed sister by pointing fingers at her. Dear Khadija I hope everything is alright as I have not seen replies from you since the post.

By azilana7037• 20 Jul 2012 20:31
Rating: 2/5
azilana7037

She has all the faculties of a woman/female...it is unfortunate that her body rejects androgen that is needed for her to reproduce.

Why would you say she's of the 3rd sex?

Is it because your sister has an extra Y chromosome in her DNA?

She has a hormonal disorder but that doesn't mean she's a MAN.

You should RE-READ WIKIPEDIA or research more...because it is obvious that it is you have a problem with it and calling her a third sex.

By Eagley• 20 Jul 2012 17:32
Eagley

Will pray that God's guidance and strength be with you & sister in your trials.

"She is in India and this is actually her profile I am using." - Hope no one knows her from this profile, to maintain confidentiality. Take care.

By Knight Returns• 20 Jul 2012 17:15
Knight Returns

Please take her to an endocrinologist and carry out a check on her for the presence of testicular tissues in her groin region. This needs to be removed through a surgery or else it can become cancerous.

She/he is still an individual and should have the right to live a normal life though, I am afraid, would never be able to bear children.

By anonymous• 20 Jul 2012 17:12
anonymous

Sorry for misunderstanding. You are the man. Atleast you have some idea what she is talking about. The rest of us are resorting to wikipedia and google before we can talk.

Dear Khadija it will all turn out well. Keep your hope in Allah. He will show the way.

By anonymous• 20 Jul 2012 16:39
Rating: 4/5
anonymous

Hmm..are you asking her to consider a sex change. Why? I think you are confused. She is not intersexed. I think she is hte total opposite of male. I have known a person with this syndrome while in college. She was extremely beautiful and very feminine and curvy. She told me that most people with this syndrome are extremely feminine.

By anonymous• 20 Jul 2012 16:23
anonymous

we wud remember you and yr sis in dua and ALLAH ahlam ull find a peaceful solution have faith in ALLAH

By FathimaH• 20 Jul 2012 15:44
Rating: 2/5
FathimaH

And Ramadhan Mubarak. Your sister's situation is a sad one no doubt BUT don't give up hope for Allah is able to do all things and everyday great advancements are made in the field of science. Perhaps one day Insha Allah your sis may very well be able to have kids and a normal family life too. So just seek out the best doctors and counselling in this field.

And always remember one's ability or inability to have kids is not a sign of him/her been blessed or wretched. For Allah gives wealth and children as a source of trials and NOT to honor them as people mistakenly believe. Hence he who has them are as trialed as the one who doesn't.

Just make lot's of dua for your sis specially in this month so full of Allah's blessings, and do all it takes.

She is still your sister come what may and will need you to be strong and supportive of her at all times. So be her source of strength always.

Barakhallahu feeki and please PM me whenever you are free. Take care!

By anonymous• 20 Jul 2012 15:29
Rating: 4/5
anonymous

MIMH you are so right. Dear Khadija, May Allah bless your good intention. But do you have your sisters permision before you expose this. This maybe very shameful for her. As far as I know she should continue doing what makes her happy. She can hopefully marry and she can adopt as many children as she likes. This will add to her good deeds.

By anonymous• 20 Jul 2012 15:24
Rating: 2/5
anonymous

If you consult Islamic scholars she will be told she is a deviant even though she has a recognised medical condition. They will be no help.

Get professional medical help and support from people who suffer from the same condition. They can give advice on how to lead a normal life.

By hms• 20 Jul 2012 15:21
hms

If u consult Islamic scholars, you will be more confused with different opinions and you will suffer more, In my opinion with limited knolwedge, leave her as she is now, dont bother much and think that this is her fate.

By anonymous• 20 Jul 2012 15:20
anonymous

She came here for support. I see you are goving her a lot of it.

By anonymous• 20 Jul 2012 15:19
anonymous

I don't think it is about comfort. She has lived all her life as a female. But in Islam it is wrong for a man to dress as a woman and a woman to dress as a man. It is ver complicated issue. I leave for the understanding of somone who knows the topic.

By anonymous• 20 Jul 2012 15:17
anonymous

A difficult problem to understand but she is lucky to have a sister like you to support her. Try these people, a wealth of academic study and support groups.

http://www.aissg.org/22_CAIS.HTM

By anonymous• 20 Jul 2012 15:16
Rating: 2/5
anonymous

As far as i can remember, in the 70 signs of qayamat, it says Man will behave like a woman and woman like a man. I will get more on this.

Men will begin to look like women and women will begin to look like men

By hms• 20 Jul 2012 15:13
Rating: 3/5
hms

Inshallah, i will remember her in my prayers, In my limited knowledge i feel she can continue whatever she is now and should continue being a women and being with women, there is no as such much to be done for this syndrome.

By anonymous• 20 Jul 2012 15:07
anonymous

We need to prove such things from hadith and islam. I suggest to consult a islamic scholar for this.

By anonymous• 20 Jul 2012 15:05
anonymous

I think she should continue being with women , but she can dress in male clothes if she feels uncomfortable in female.

By anonymous• 20 Jul 2012 15:04
anonymous

Is the zikr of this syndrome mentioned in Islam

By anonymous• 20 Jul 2012 15:04
anonymous

I will Include her in my prayers

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